School has started....let the crazy begin

I can't believe summer is over already and school is back in session. The girls were so excited to get to school to see their friends but their teachers too. I will have to say that we do have some of the best teacher in our school district.

As Taylor starts 5th grade this year at a new school, I was a little nervous. It is new for the both of us. She is now is middle school...I don't think I am ready to have a middle school kidoo yet. It just seems like yesterday that she was born. It makes me so sad...she is growing up so fast. Where has the time gone? This was the first year that I didn't get to go with her on the first day of school. Since I was unable to do that we went to back to school night and meet her 3 teachers and yes, I did get a picture of her homeroom teacher with her. I have to have it for the scrapbook!! 

 

Kaylie's back to school night was great as well.  I had to work most the event for our PTA.  It was a great turn out for our school.  Kaylie had fun running around the school seeing her old teacher Mrs K....we miss her so much.  Kaylie had Mrs K for two years so this is our first year with her.  She was a great teacher and Kaylie loved her. 

 

Now we are in the full swing of school and Taylor has had her audition's for the Timber Singer...we find out today if you made it.  She is also doing volleyball this year.  Kaylie signed up for cup stacking.  It is busy times but I would not have it any other way. 

 

Hunter and Jalinn are doing great too.  Jalinn is doing great at PT and yesterday she said DADA for the first time.  Time is going by too fast!!!

Jalinn's First ENT Visit July 2010

We finally got into the ENT Clinic at Children's Mercy. Jalinn's pediatrician wanted her to see the ENT so that could just check things out. Per all the research that has been done for achon there is a chance that Jalinn might need tubes in the future.

The ENT was great. Jalinn did have a little fluid in the left ear but it was not red so there was no need to worry. Jalinn does have a slight cold right now and that could be why the fluid is there. They did a hearing test and Jalinn had a partial fail because of the fluid.

Overall the appointment went great.

Jalinn is now 15lbs too. She is all rolls.

I love that girl so much!!!

Jalinn's First Phyiscal Therpy Appointment

When I took Jalinn in for her 6 month check up her pediatrician thought it would be good that we start to see the PT. With Missouri First Steps Program Jalinn doesn't qualify so we are going through our insurance and see the PT at Children's Mercy Hospital. She had her first appt about 3 weeks ago and her PT is so happy with what Jalinn is doing. She is rolling over and has great head control. At the first appointment we went over Jalinn's medical condition like all of the doctors that we see. I am so happy that I keep track of everything and bring Jalinn's book with me to every appt. It helps out so much. Her PT just really just play with her and she focused on the legs. Right now Jalinn is not wanting to up in pressure on her legs for standing. So she gave us exercises to do and home and they are helping. Her PT wants to see her twice a month until October.

At our last visit with the PT she told me that she did a "standard" test on Jalinn and right now is a ranking at at 4 month old. Jalinn is now 7 months. She told me now to worry about this because achon do fall about 6 months behind "normal" kids. Has a mother I worry about I know in Jalinn's time she will do everything she is suppose to do and then we will not be able to stop her.

Jalinn is developing her own personality now. She is just a joy to be around.

The Big Birthday Bash June 2010

With 3 of my kiddo's birthday in May, June and July we decided to have all of there birthday's at one time to make it easier on us and our family. We I told the girls that we were having the party at our house and they could invite their friends, Taylor had a list of 25 friends yes 25...my thought was what was she thinking. I finally got her to narrow it down to 10. With all the invites sent out the planning started. We decidee to have a BBQ and instead of cake we did ice cream sundaes. We also had a bouncy house (thanks to Kaylie's friends for letting us borrow it), jump ropes, hula hoops and the sprinkler.

The day of the party we got all set up and we were told by the news that there was chance of rain but who believes the news...well we should have. The party was to start at 1pm and at noon it started to rain. I don't mean a nice rain shower it was a down pour. The wind was horrible and it was raining so hard that we couldn't see the house across the street. But kids were still being dropped off. Thanks to all the parents that braved the weather. So with the rain we could have the party outside. I had 25 kids in my house and my house is not set up to have 25 kids plus my whole family. It was packed. Once the rain let up about an hour later the kids all went out side and played and had a blast. The party was a success and no one got hurt.

Thanks to everyone that came!!!

Pictures are on facebook...hope you can take a look at them.

A wonderful poem

I ran across this poem from one of my POLP's mom (Tonya) on her blog and facebook and thought I would share it. It fits so close to home now.


How God choses a disabled child for a mother-Erma BombeckShare Published in the Today Newspaper Sept. 4th, 1993

Most women become mothers by accident, some by choice, a few by social pressures, and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger. "Armstrong, Beth; son; patron saint, Matthew. "Forrest, Marjorie; daughter; patron saint, Cecelia. "Rudledge, Carrie; twins; patron saint.... give her Gerard. He's used to profanity. " Finally, he passes a name to an angel and smiles, "Give her a handicapped child." The angel is curious. "Why this one, God? She's so happy." "Exactly," smiles God. "Could I give a handicapped child a mother who does not know laughter? That would be cruel." "But has she patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it." "I watched her today. She has that feeling of self and independence. She'll have to teach the child to live in her world and that's not going to be easy." "But, Lord, I don't think she even believes in you." God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness." The angel gasps, "Selfishness? Is that a virtue?" God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, there is a woman I will bless with a child less then perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a spoken word. She will never consider a step ordinary. When her child says "Momma" for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations." "I will permit her to see clearly the things I see---ignorance, cruelty, prejudice--- and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life because she is doing my work as surely as she is here by my side." "And what about her patron saint?" asks the angel, his pen poised in midair. God smiles. "A mirror will suffice."

Trying to catch up

Since my last post it is has crazy with the end of school happening. For Taylor we have her 4th grade field trip to Jefferson City and we had a blast. It was a long bus ride with about 45 kids but we all made it. Then it was time for the 4th grade farewell party. In our school district elementary ends at 4th grade. We had t-shirts made up for the kids to keep. During the party we had tons of food and they all just got to hang out with NO RULES. The loved it. It was sad...I have known most of these kids since they were in kindergarten and they are all grown up. Taylor is now off to 5th grade at Fire Praire. I know she will do great.

We also had a end of the year party for Kaylie's class. The class has been together for kindergarten and 1st grade. She has one of the best teachers out there. Not only did Mrs K teach my daughter so much she is part of our family. I truly love her...she will always be a part of us. The party was really fun. Mrs. K read aloud a poem she did, it explained something about each of her students. Kaylie's read "Can read about any book". I am so proud of Kaylie is reading on a 4th grade level and is only in 2nd grade. It pays off to have an AWESOME teacher!!!

Jalinn and Hunter are doing great. Jalinn has finally figure out how to roll over. Of course, I was not home to see it. But she did do it again for me when I got home. She is growing up. Hunter is finally potty trained!!!!! No more diapers for him. He is doing so good. Jason told him that he is starts to go potty on the potty chair he can go hunting. Hunter is ready to go hunting now.

Now it is time to get ready for the big birthday bash on June 10th. With Taylor, Kaylie and Hunter's birthday being all in May, June and July we are having one big party. Can't wait for the party.

Ortho Visit

Well we had Jalinn's first ortho visit today. It went rather well. They took xray of her legs and said they look great. We just have to watch her lower back. A portion of her spine is sticking out so we go back in October for xray on the spine and a visit with the doctor. It was an early appt but well worth it.

I hope everyone had a great Mother's Day over the week. I did...the kids all made me cards and Jason took Hunter fishing for a few hours so I could just have some time to myself. We then went to Mom and Dad's for a bbq with the rest of the family. I love my crazy family.