WHY????

Today is one of those days I ask WHY????  Why my baby girl??  Why us and my family??  What did we do??  I am having a hard today and I am not sure why.  It just hurts so much to see Jalinn go through all she has already under the age of 2.  I know she is strong but why does my baby have to be so strong.  I know that we are luckly to have her and what she has brought to our lives but still it hurts.  I look at her all the time and wonder why us, why were we chose to be her parents.  Don't get me wrong I would not change a thing but I do wonder "WHY".  I am so grateful to everyone in the POLP and LP community that I have meet in person and over Facebook.  If it was not or you all and my family I don't know how I would have gotten through the last year and half.  It has been hard but also a enjoy to see Jalinn grow stronger and do as well is she has done. 

 

The not so fun sleep study

Luckly I was told before Jalinn's sleep study that they are not fun and to make sure you get sleep before the study so I took my POLP advance and I did get a small nap in before the study.  We had to arrive at Children's Mercy Hospital and hour and 15 minutes before her bedtime just to get checked in and to get her hooked up to everything.  When we got there Maddox and Katy where there to for his sleep study so the kids got to see each other and we were able to talk for a few minutes.  I will have to say if it was not for Katy this past year and all my POLP I would be lost.  I love you all so much, you all have a special place in my heart!!! 

Jalinn was able to play for a little while before they started hooking her up.  She was so happy at this point.

The nurse we had was wonderful and they even had a child life specialist come in to help with Jalinn as well.  It helped a little bit.  The nurse started by putting the wires on each of her legs there was 4 total and they started on her chest and tummy.  There was for 4 or 5 on her chest and tummy plus 2 belts on her tummy. She did fine for these but was more upset once she got to her chest.  Then it was onto the head.  She was pissed and I don't blame her.  I hated it for her.  I just hate that our kiddo's have to go through all this.  It is not fair.  It since like there were a million on her head but I think it was around 10 or so.  Once she got all the wires on her head she wrapped it so she would not be able to pull them off durning the night.  Oh, I forgot they do put a nasel cannon on them as well.  Jalinn hated it!!!

Once that is all done it is time to start.  Jalinn was so pissed off at this point that even holding her didnt help.  Light off which means that you lay there with nothing to do but try to sleep.  Jalinn is a very light sleeper and the slighest noise will wake her up.  If the nose cannon or a wire would come lose the nurse would come in and fix it and it up her up.  I think she finally sleep for about 2 hours solid and then after that she was up off and on. 

 

 

Finally when morning came which felt like FOREVER we were able to take all the wires off.  They use this red marker and white sticking stuff to keep the wires down it was gross looking.  It does come off pretty easy with warm soap water so I was happy about that.  It will take 2 to 3 weeks for the results to come back in.  Also, since her legs moved more than 5 times during the study they had her blood drawn to check her iron.  Hopefully all looks good and we don't have to go through this again!!!  It was NOT FUN!!!!